Health Systems & Services Research | Headache
Developing Common Data Elements (CDEs) for headache clinical research: A National Institute of Neurological Disorders and Stroke (NINDS), NIH initiative
Brin Mitchell, Andrew Charles*, Sheena Aurora, David Borsook, Dawn Buse, Roger Cady, Michael Cutrer, Boukje de Vries, Hans-Christoph Diener, David Dodick, Frederick Freitag, Benjamin Friedman, Jack Gladstein, Peter Goadsby, Al Guerrero, Michael Harrington, Andrew Hershey, Tony Ho, Timothy Houle, Zaza Katsarava, Tobias Kurth, Michel Lanteri-Minet, Lenor Launer, Richard Lipton, Manjit Matharu, Kathleen Merikangas, Donald Penzien, B Lee Peterlin, Scott Powers, Louis Ptáček, Nabih Ramadan, Michael Rapoff, David Rothner, Ann Scher, Guus Schoonman, Todd Smitherman, Gisela Terwindt, Peer Tfelt-Hansen, Gretchen Tietjin, Catherine Turkel, William Young, Linda Porter, Joanne Odenkirchen, Courtney Ashton, Stacie Grinnon
*Corresponding author: Andrew Charles
University of California, Los Angeles, CA, USA
F1000Posters 2012, 3: 635 (poster) [English]
Poster [977.72 KB]
54th American Headache Society Annual Meeting 2012, 21 - 24 Jun 2012, P101 LB
To reduce study start-up time, increase data sharing, and assist investigators conducting clinical studies, the National Institute of Neurological Disorders (NINDS) embarked on an initiative to create common data elements (CDEs) for neuroscience clinical research, and is working with headache experts to develop disease-specific CDEs.
NINDS CDEs have been developed to facilitate neuroscience clinical research. Version 1.0 of headache CDEs have been developed and based on feedback and periodic review, the CDEs will be refined to maximize their utility in accelerating headache research.
This work received research grants.
National Institutes of Health (NIH), N01-NS-7-2372
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